The Maker movement is a do it yourself technology-based movement that espouses creativity and tinkering in community settings, and is creating innovative health solutions across the globe, yet most healthcare stakeholders are unaware of “makers” and the maker movement. In this webinar, Joyce Lee, MD, MPH, will talk about the maker movement, its impact inside the health community, and principles that can support the application of this movement to the healthcare enterprise.
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July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
1. @theEdgeNHS | #EdgeTalks
THE MAKER MOVEMENT: A
MODEL FOR HEALTHCARE
TRANSFORMATION?
Joyce Lee
Friday 1st July 2016 at 9.30am BST
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3. The team today
Chat room monitor
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Twitter monitor
Olly Benson
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Session chair
Dom Cushnan
@DomCushnan
5. Our Next Edge Talks
August 5th
Sue Haines
Talent management
September 2nd
Maxine Craig
Culture and Change
6. The Maker Movement:
A Model for Healthcare
Transformation?
Joyce Lee, MD, MPH
http://www.doctorasdesigner.com/Twitter
: @joyclee
7. Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysis of Social Media)
Design and Making as a Healthcare Platform
8. Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysis of Social Media)
Design and Making as a Healthcare Platform
10. Associate Professor, Pediatric Endocrinologist
Health Outcomes/Clinical Researcher
Learning Health Systems
Mobile Technology/Data Visualization
Participatory Design/Social Media
Quality Improvement Director for Pediatric Diabetes
Background
11. “Folk in black turtlenecks and
designer glasses working on
small things like the Apple
Watch”
-Tim Brown
No Formal Training in Design
23. “Two videos recently impressed
me with their use of illustration
and narration to educate an
audience about health…What
interests me is how approachable
and informative they are,
regardless of the production
value.”
-Susannah Fox
30. To integrate design thinking into
the medical enterprise and to
promote the participation of
makers in the healthcare
landscape
To partner with patients and
caregivers to create opportunities
for participatory design, citizen
science, and open science research
To provide tools and technology-
based systems for transforming the
patient experience
Education
Research
Clinical
31. Empathy PrototypeDefine Ideate Test
Human-Centered Design
”An approach that puts human needs, capabilities,
and behavior first, then designs to accommodate
those needs, capabilities, and ways of behaving”
32. Participatory Design
”an approach to design
attempting to actively involve all
stakeholders in the design process
to help ensure the result meets
their needs and is usable”
53. “Being a maker is not taking
the world as it is”
-Dale
Dougherty
“The essential democratization of the
technology has happened; once you
put the tools in the hands of
everybody, it liberates the ideas and
creativity of so many people”
-Chris Anderson
59. Design Insights
We are all designers (patients/caregivers/HCPs)
Design WITH and not FOR patients/caregivers by
inviting them to the table
Make design a part of the workflow
Design with members of a different tribe
Embrace the maker movement
60. Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysis of Social Media - University of Michigan
IRB)
Design and Making as a Healthcare Platform
68. Wrote Original code
for CGM
Twitter
Blog
Contractor
In India
Elance.com
"Hi the job was too simple I
have already deployed it for
you. You can pay whatever
little amount that you may
like to play. Elance is not
allowing to bid less than
$20"
Twitter
69. Blog
Wrote Original code
for CGM
Contractor
In India
Elance.com
Facebook
post
Twitter
Twitter
“So, I saw her, she saw too right what this could
do to change her life…so I actually went home
that night and messaged xxx and said, can we
set up another one”
70. Blog
Wrote Original code
for CGM
Started
CGM in the
Cloud FB
Group
Contractor
In India
Elance.com
Facebook
post
Twitter
Twitter
71.
72.
73.
74.
75. #WeAreNotWaiting…
…while our endocrinologist tries to assemble the
disjointed pieces of the data puzzle
…for regulators to regulate
…for device manufacturers to innovate
…for peace of mind that our children with type 1
diabetes are safe
76. “…organically a support group came out of the
community [and] was basically working
24/7…Somebody would always be monitoring the
Facebook page…”
Technical Troubleshooting for Nightscout
General Diabetes Technology
Skin Rashes
Blood Sugar Patterns and Management
Issues with the
School Nurse
Endocrinologist
Insurance
82. Open Source Code
“What one person knows, everybody knows…So it’s
travelling at the speed of light.”
83. Collaborative Innovation Network
A cyberteam of self-motivated people with a
collective vision, enabled by the Web to
collaborate in achieving a common goal by
sharing ideas, information, and work
99. A Maker Movement for Diabetes
Patients/caregivers as lead innovators
A Model for Personalized Medicine (Devices,
wearables, mobile apps)
Sharing of open source code through Github and
sharing of knowledge through social media
How do we translate this knowledge to research
and care delivery?
100. Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysis of Social Media)
Design and Making as a Healthcare Platform
102. Meta-design (Gerhard Fischer)
“Design for designers”
Users become co-designers and co-developers
The meta-designers design systems explicitly for
evolution
http://l3d.cs.colorado.edu/~gerhard/papers/2013/EUD.pdf
103.
104. Meta-design Objectives
Changes must seem possible
Changes must be technically feasible (open systems)
Benefits must be perceived
Environments must support people’s actual tasks
Barriers to sharing changes must be low
106. Valerie Castle, Ram Menon, Nancy Benovich
Gilby, Emily Hirschfeld, Ashley Garrity, Matt
Kenyon, Preciosa Choi, Sarah Clark, Peter
Honeyman, Liz Kaziunas, Ben West, Dana Lewis,
John Costik, James Wedding, Weston Nordgren,
Ken Stack, CGM in the Cloud Community
Twitter: @joyclee
http://www.doctorasdesigner.com
http://www.healthdesignby.us/
#makehealth
It Takes a Virtual Village
107. Our Next Edge Talks
August 5th
Sue Haines
Talent management
September 2nd
Maxine Craig
Culture and Change
Notas do Editor
B has his own blog now
I posted the video on my blog
-She broadcast it to the entire school just a day later
-and it went a little bit viral among a community of pediatrician bloggers
Susannah fox of the pew internet and american life projec
And we ended up creating a trilogy of videos about ingredients and food handling
And a third video about asthma medications.
-I also made a low fidelity version, a paper booklet/nametag with links to the videos and more information, emergency contact numbers, and hospital information,
-This is the future of healthcare: Patient as expert, maker, collaborator in the creation and production of health. This is bigger than the next blockbuster drug or the newest FDA-approved medical device. It’s patients creating with patients in a collaborative community. What I want is for healthcare to embrace this vision for the future.
-But to get to the future of healthcare,we first have to overcome the culture of healthcare,
-We are pairing patients with designers to create educational materials inspired by the patient experience like digital comic books
-And we are trying to create a culture of design in healthcare, which treat designs, not as a distraction from health problems, but as a critical tool for the creation of health.
Will look more like this, a patient to pt, active, and collaborative
And we began to draw the connections between the maker movement and participatory design
And we began to draw the connections between the maker movement and participatory design
-This is the future of healthcare: Patient as expert, maker, collaborator in the creation and production of health. This is bigger than the next blockbuster drug or the newest FDA-approved medical device. It’s patients creating with patients in a collaborative community. What I want is for healthcare to embrace this vision for the future.
Get rid of the numbers and then
And maybe this model could translate to the clinic experience. Right now clinic is a lonely solitary place where patients and caregivers are isolated inside rooms for 2-3 hours with nothing to do and no opportunity to meet and learn from peers. So right now we are in the process of prototyping a maker clinic, which brings together the experts in diabetes, encourages them to create and make for their health, and allows them mutually share their knowledge and wisdom with their peers. So what’s the ROI in making? Why might it make a difference? I wan to share you a story of making that has transformed the type 1 diabetes community.